The “65 Roses” story dates back to 1965 when an observant 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as "65 Roses." Today, “65 Roses” is a term often used by young children with cystic fibrosis to pronounce the name of their disease.
Cystic Fibrosis is a life-threatening genetic disease that affects 30,000 children and adults in the United States. It is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.
Cystic Fibrosis causes complications with almost every organ in the body, including the lungs, pancreas, liver, and intestines.
Cystic Fibrosis is a very personal disease for the AAGI family.
Our owner and founder of AAGI, Suzanne, has a son that has been diagnosed with Cystic Fibrosis. Suzanne and her husband were both CF carriers and their son Lloyd only had a 1 in 4 chance of getting the disease. Lloyd spent the first few years of his life in the hospital undergoing treatment to manage the life-threatening illnesses that Cystic Fibrosis can cause.
Although Cystic Fibrosis can cause lifelong difficulty and shortened life-span, the CF Foundation has been able to conduct research on the disease and have been able to create medications that can potentially help those with Cystic Fibrosis. Because of the CF Foundation, Lloyd's disease has been managed and he's been able to experience life the same way that many of us are able to.
Number one, by spreading awareness! Cystic Fibrosis is a rare disease, so not many people are familiar with it, despite its widespread effects on the body.
Number two, donate! The Cystic Fibrosis Foundation is a great organization that helps fund research for treatment and improving the quality of life for CF patients.